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Mr. Bill!

Where in the HECK has the summer gone?!  It seems like it was just May, and here we are in September already!

But that’s not why I’m writing.  I’m writing because Lucas made me laugh today.

Have you ever read or been told that autistic kids have no imagination?  Yeah, me too.  Today wasn’t the first time that Lucas proved the ‘experts’ wrong, and he reminded me again why I don’t necessarily believe what those experts say!

Lucas had a piece of leftover pizza for lunch.  We’ve taught him how to use the microwave (under our supervision, of course), so he heated his slice of pizza.  Then he added ketchup (not something I would do, but whatever…)

He finished, and said, “Look Mom, that’s Mr. Bill.”   Well here, see for yourself:

Pizza face!

Meet Mr. Bill, the pizza slice!

Okay, it doesn’t look a thing like Mr. Bill.  Or maybe it does, in Lucas’ mind.  The point is, I’ve NEVER made a face on a piece of pizza, and Lucas used his imagination to do just that!

Pffft!  Experts are over rated.  Never underestimate your kid’s abilities; they can really surprise you!

Mother’s Day 2012!

Lucas gives a kiss to Mom.

Lucas gave me my first kiss when he was 4 years old.

Happy Mother’s Day!

To every mother who knows what it’s like to love until it hurts, I salute you.

You didn’t know you could love this deeply, protect this strongly or fight this hard. But you DO love, protect and fight, because your child or children mean everything to you.

And THAT is why God made mothers!

Wishing you a wonderful day, and may God bless you AND your children!

Another birthday!

Well Lucas, here we are.  You’re twenty two years old today.

Wow, what a time it’s been.  You’ve gone from being a running, shrieking, unresponsive kid to being a young man who takes care of his own dog and helps out at Church!

When you were little, your brother had to hold onto you so we could take your picture.

Lucas and his big brother.

Lucas' big brother holds him tight for a picture!

Now, you happily sit for a photo with your dog…

Lucas and his dog.

Lucas with his dog on his 22nd birthday!

And when your brother calls today you’re able to talk to him and tell him that you’re going to Pizza Hut for dinner!

I remember when we couldn’t even consider taking you out to eat, thanks to your inability to wait or sit still, and your determination to grab food off of strangers’ plates, etc.

But just look at you now!

  • You work hard at LucasWorks, assembling jewelry and other products, and pulling the orders for shipment.
  • You take care of your own dog, feeding and walking her every day.
  • You water the plants at Church, and even check and replace the burned out candles.
  • You set and clear the table, make your own bed and try to put things away in your room.
  • You haven’t scratched or hurt yourself in a long time, and that’s GREAT!
  • And perhaps most important, you do your best to communicate with us and with others, sharing funny things on TV, saying ‘please’ and ‘thank you’, and working hard to acknowledge other people.

Thanks to you, I’ve met and been involved with some of the nicest, most dedicated teachers, doctors and therapists in the world.

You’ve grown so much more in these twenty two years than the ‘experts’ predicted, and you’ve helped many others to grow, too; in patience, understanding and love!

So HAPPY BIRTHDAY to you today, my dear Lucas!  Now let’s have some FUN!!

 

Lucas and the Titanic

Lucas loves the Titanic. He loves the size of the liner and he seems to be fascinated with the huge engines, the boilers and enormous smoke stacks.

He’s also fascinated with the story of this most famous of ocean liners.  I think that maybe the story of the Titanic has helped him to understand the concept of death and loss.

When the James Cameron movie went to video, we bought it and watched it.  Lucas was only 7 years old, and much to our surprise, made his own version of the great ship using video boxes, books and cups (now THAT’S what I call imagination!)

Lucas' first Titanic built with video boxes and cups.

Lucas built his first Titanic with video boxes and cups!

Yeah, it has an extra ‘smokestack’, but I think it was a pretty good attempt, don’t you?

In the years since making that video box and cup version, Lucas has collected books and other memorabilia, other movies (there are several) and looked at many websites devoted to the great ship.

He’s built a better model of the ship. I helped, but Lucas had to help read the directions, find the numbered parts, help paint them and then be patient while paint and glue dried (we took a week to build it.)

Lucas shows off his Titanic books and memorabilia.

Lucas with his Titanic books, memorabilia and the model he built.

He’s even made his own version of the reciprocating engines that operated the propellers, using Legos and toy train engines.

Lucas made Titanic's reciprocating engines with Legos.

Model of Titanic's reciprocating engines, made with Legos and model train engines.

The engine wheels engage and turn the pistons, which drive the propeller!

Reciprocating engine's back view, with the propeller.

The train engines move the pistons, which then turn the propeller! INGENIOUS!

I bring this all up because this week marks the 100th anniversary of Titanic’s only voyage and her sinking.  Lucas is giving us a day by day update of what went on.

Pretty amazing for a young man who wasn’t supposed to be able to communicate, eh?

If your child is interested in something, you may be able to use that interest to work on communication, reading (or at least an interest in books), following directions (when building a model, for instance), and many other skills that will help them grow and enlarge their world.

Acts of Kindness

Someone challenged me to write about ‘random acts of kindness’, but there’s not a lot of ‘random’ in the world of autism! Most things need to be planned out; life goes much more smoothly that way.

But we DO encourage and help Lucas to perform ‘acts of kindness’. We want him to feel like part of the community, and to participate when and where he can.

These days, Lucas helps take care of the plants at our church. It’s something he’s able to do, and he seems to enjoy it.

Once a week, we take the watering can up to the church. There, he fills the can, and waters all the plants.

Lucas watering the plants at church.

Lucas waters the plants at our church.

He also checks all the candles in the church, and replaces them if they need replacing.

Lucas replacing the spent candles in church.

Lucas carefully replaces all the spent candles in our church, too.

In a few weeks, he’ll begin to help me weed the grounds around the church, too.  While he doesn’t know a weed from a flower, he CAN collect the weeds I pull, put them in a basket, and then take them to the dumpster.

Have you found a way for your child to participate in the community?  Even if they’re not ready to do it now, the day might come when they CAN lend a helping hand.

We’ve known people who take their kids to help at the local animal shelter, spending an hour or two per week just petting and playing with the dogs and cats.  (Animals can be easier to deal with than humans sometimes!)

Another idea might be to have your child help make some cookies to take to a neighbor or a local nursing home or medical center.  Can they add the measured ingredients to the mixing bowl?  Stir the cookie dough?  I’m SURE they can ‘taste test’ them once they’ve cooled!

Most neighbors, especially those who live alone, would probably love a gift of cookies, and it would give your child the opportunity to become better known in the neighborhood.

You don’t even have to go into the neighbor’s house. Just prepare your child that you’ll knock on the door, say “Hi”, and leave the cookies with them.

Lucas has also helped to feed and care for a neighbor’s dogs when they go away.  His dad goes with him, but Lucas helps let the dogs out to pee, puts their food and water in the bowls, then lets them back inside and plays with them for a little while after they eat.

There are many other acts of kindness needed in all communities.  Check your church, libraries, neighborhood, local hospital, nursing home or animal shelter.  Maybe you’ll find a way to help your child help someone else and become a part of the community, too!

Young Lucas

I was going through our photos, and came across this one of Lucas with his dad.

Lucas on his dad's shoulders

Because he got into EVERYTHING, Alan took to putting Lucas on his shoulders whenever we went anywhere.

We used this technique when we went shopping, to family events or did just about anything that required us to take Lucas.   It kept him from running away (or into traffic!).

When Lucas got too big to carry this way, things became much more difficult, since he still didn’t know how to communicate, or  to recognize danger.

As a matter of fact, the last time we attended my family’s annual family picnic, Lucas was seven years old, and too big to be carried this way.  He ran right across the horse shoe pit, coming within about 2 inches of a getting killed by a heavy, iron horse shoe someone had just thrown.  That’s why it was the LAST time we attended…

2010 – What a year…

Well, this has been a really busy year for us (the reason I haven’t updated in so long!)

Since I last checked in, we’ve had several life changing experiences happen to us; always a challenge in the world of autism…

1.  My husband left his job of many years (he was offered a good early retirement option, and took it rather than taking the chance of being laid off later!) 

Moving is ALWAYS hard!

2.  We decided to leave Delaware. We moved there for the Delaware Autism Program, but over the years we watched the program degrade more and more, and in his final classroom there, Lucas was actually LOSING skills (see previous articles in this blog).  It was time to help him begin a new life ‘after school’.

3.  We prepared our Delaware home and sold it, then moved to the great state of South Dakota.  In addition to wonderful people and unbelievable scenery, South Dakota is also a great place to run a business.  Now that Lucas is finished with school, we can really focus on helping him to become even more involved in his job at LucasWorks. 

Lucas' beloved Grammy, Eleanor Larsen

4.  Only a few short months after our move to South Dakota, I had to return to Virginia, as my mother was dying of cancer. 

Lucas’ grandmother died on Halloween (a whole new experience for Lucas, made that much worse because of his association of Grammy’s death with the Halloween specters of ghosts, goblins and cemeteries.)

So there you go, the short version of 2010:

  • A job change for my husband,
  •  A major move,
  • Lucas leaving school,
  • The death of my mom. 

Any one of these is a major event, but taken all together in one year, I say “Good riddance, 2010; don’t let the door hit you on the way out!” 

I hope everyone else’s year was a little calmer than ours was, and look forward to getting back to sharing life in the world of autism in 2011.  I plan to get back to regular updates in the next week or two.

Lucas’ first joke?

Lucas was watching “Jurassic Park” today.

During the part where they were lifting a cow through the air to drop it into the Velociraptor cage (kind of in a sling, at the end of a crane), he said, “Look Mom, cow is Buffalo wings…”

I think maybe he was making a joke!  A “flying” cow = Buffalo WINGS, get it?!

On another note, we heard from a woman namde Bobbi who has a website for banjo players called Windy Strings .  She works with my husband, has another friend who has an autism website, and got us together via an e-mail.

Bobbi also kindly placed a link to LucasWorks on her site, and thanks to her, we’ve discovered a new website called Autism Hangout .

So thank you, Bobbi, for your kindness!  It’s things like this that make the world a better place for all of us!

Lucas gets creative!

Geez, how is it possible that it’s already the middle of January! 

Christmas and New Year’s went by WAYYY too fast, and the start of a new year is always a busy time for our LucasWorks business.  We’ve also been trying to get Lucas’ IEP done since November, which I’ll talk about soon (I promise!)

But Lucas showed some GREAT imagination, and I just had to stop everything to share it! 

He calls me into the living room, where his dog Dixie is sitting on his lap, just as happy as can be:

Lucas and his dog, Dixie

So I go in and ask, “What’s up, Lucas?”  Lucas responds with, “Look Mom, Angry Dog!”

Lucas and his

Can you see how Lucas is pressing Dixie’s forehead down, to make wrinkles?  HE MADE HIS DOGGY FROWN!!!

This is GREAT (and also hilarious!) 

I’ll NEVER believe ANYONE who tries to tell me that my son cannot learn, or is too old to make progress!  Anyone who’s got the imagination to figure out how to make a dog look angry is definitely still capable of learning, so THERE (picture me sticking my tongue out here.)

Okay, it’s back to work for me.  I’ll write about his IEP this coming weekend (I need to wait until the trauma begins to fade…)

Happy Thanksgiving!

Tomorrow is Thanksgiving here in America. 

This year has been a tough one, with the economy in a shambles and too many uncertainties in life.  But tomorrow,  we’ll sit down to dinner and give sincere thanks for all the blessings we’ve enjoyed this year. 

For even though times are tough, I have many things to be grateful for.  I have a husband who does his best for us, and two terrific kids.  We have a roof over our heads and we haven’t gone hungry lately (although it would probably do us good once in a while!)

I know teachers and others who work very hard to help autistic students, (sometimes in spite of their bosses).  Most of all, I know that God is good, and everything done in this life is simply to prepare us for the next one. 

 I wrote an article a few years back on Giving Thanks, because sometimes we tend to get so wrapped up in all the problems of life in the world of autism that we forget all there is to be grateful for.   There’s no reason to repeat here what I wrote there, because it’s all still true.

 So enjoy the article, and no matter where you live, consider taking a moment to be thankful for all the GOOD things in life.  It’s kind of funny; once you get started, you may find that your life is just full of good things!